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Nicole Delian, 17, suffers from a condition that makes her sleep up to 19 hours a day and as much as 64 days in a row. Nicole Delian is tired of sleeping.
This 17-year-old teenager from North Fayette, Pa., has a rare condition called Kleine-Levin Syndrome -- or "Sleeping Beauty Syndrome" -- that makes her sleep 18 to 19 hours a day.
And when she does wake up, she is often so tired out that she is in a sleepwalking state and doesn't remember doing basic things like eating, according to KDKA-TV.
Nicole's sleepwalking state has been so severe that she once slept through the holidays, awaking one day in January when she finally opened Christmas gifts alongside her family, according to ChartiersValley.Patch.com. .
"She's never really adjusted to it," her mother, Vicki Delien told the website. "She's 17 now and it really upsets her. She's missed out on a lot."
Delien told talk show host Jeff Probst that the teen has at times slept 32 to 64 days in a row, waking only in sleepwalking mode to eat.
Kleine-Levin Syndrome is incredibly rare, only affecting about l,000 people worldwide, and very hard to diagnose.
In Nicole's' case, it took 25 months for doctors to diagnose her, according to ChartiersValley.Patch.com, and everything from a virus, to epilepsy(癫痫) to West Nile was mentioned, including, unfortunately, the possibility she was faking it for attention..
When a typical episode of Sleeping Beauty Syndrome begins, the patient becomes progressively drowsy(昏昏欲睡的) and sleeps for most of the day and night, waking only to eat or go to the bathroom, according to the Klein-Levin Syndrome Foundation website. "When awake, the patient's whole behavior is changed, often appearing “stupid" or childlike. When awake he experiences confusion, complete lack of energy, and lack of emotions."
Patients also report that everything seems out of focus, and that they are hypersensitive to noise and light. Some patients also have intense food cravings(渴望).
The Delians did not say whether Nicole has experienced these symptoms.
There is no known cure, but Nicole's family is using a combination of epilepsy and narcolepsy(发作性嗜睡病)medication to minimize the incidents to just two a year.
1.What's the reflection of Nicole's sleepwalking state?
A.Being forgetful. B.Missing Christmas.
C.Sleeping around the clock. D.Being exhausted and bad-tempered.
2.According to the passage, Kleine-Levin Syndrome .
A.is not impossible for doctors to diagnose
B.affects approximately l,000 people all round the country
C.is also known as Sleeping Beauty Syndrome which only affects females
D.makes those suffering this condition sleep as much as 64 days in a row without eating
3.Frorn the passage we can infer that .
A.the disease will change the patients' behavior for good
B.the case of Nicole has been covered several times by different media
C.the.patients of this kind are more and more sleepy when the syndrome begins
D.the patients of this kind become too sensitive to being exposed to any noise and light
4.According to the passage, Nicole .
A.was once suspected of lying about her condition
B.has a good appetite for food because of the disease
C.has adapted to the condition and can well cope with it
D.will be cured of the disease by using the combined medication
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(2011年海南五校联考)Mother’s love is true love!She’s never stopped loving you________you become or you do.
A.whichever B.however
C.whatever D.whoever
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1.她从来不满足于现状。
She's never the present situation.
2.I am quite (很拮据) recently.
3.He (感到很好奇) the people who lived upstairs.
4.没有通过考试让我觉得丢脸。
Failing in the exam made me
5.徒步旅行能帮助我们接近自然。
Hiking can help us nature
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Twenty-six years after a terrible bicycle accident left her comatose(昏迷) for two months and with permanent brain injuries, Barbara Buchan, performs many actions more slowly than others. But on September 10 in Beijing, Buchan, at 52, the oldest member of the United States Paralympic team, broke the record and won the gold medal for her disability class in the individual 3,000-meter cycling pursuit.
“You can be very upset at the world and have everyone take care of you,” Buchan said by telephone from Beijing, “or get back on your feet again.”
Buchan first dreamed of Olympic gold at age 15 while watching the 1972 Munich Games. She became a top American cyclist by July 1982, when a terrible road-race crash injured her brain and left doctors doubtful about whether she would survive. She was wearing only a soft leather helmet at the time; her accident made the rule put into practice that cyclists wear the hard-shell helmets that are now common.
Buchan recovered enough of her athletic ability to run track in the 1988 Paralympics in Seoul, where she won a silver medal in the 800 meters. Women’s cycling was not included in the Paralympics yet, so Buchan trained to the point where she raced against men in the 2000 Paralympics in Sydney, Australia — she finished 9th and 10th in two races — and then successfully fought for a separate women’s cycling program beginning in 2004 in Athens, where she did not get a medal.
Even though she was approaching her 50s, Buchan kept racing and again made the United States Paralympic team for Beijing — where she is twice the age of most of her teammates and competitors.
“Barbara’s almost the leader of our team — she’s been through it all,” said Craig Griffin, the United States cycling coach. “She’s never retired. She’s never let her body go and then come back. I don’t think age is as big of a deal as people make it out to be.”
【小题1】According to the passage, after the accident, ____________.
| A.Buchan asked her friends to take care of her |
| B.cyclists started to wear helmets in competition |
| C.Buchan could not answer questions correctly |
| D.doctors doubted whether Buchan could come back to life |
a. She won a gold medal in Beijing.
b. She became a top American cyclist.
c. She won a silver medal in the 800 meters.
d. She suffered a terrible bicycle accident.
e. She took part in a cycling program in Athens.
| A.c-d-b-a-e | B.b-c-d-a-e | C.b-d-c-e-a | D.c-b-d-e-a |
| A.rise to your feet | B.walk on your way |
| C.go beyond yourself | D.depend on yourself |
| A.The Making of a Hero | B.From a Loser to a Winner |
| C.All Roads Lead to Rome | D.Health is Better than Wealth |
Twenty–six years after a terrible bicycle accident which left her in a coma(昏迷) for two months and with permanent brain injuries, Barbara Buchan performs many actions more slowly than others. But on September 10 in Beijing, Buchan, at 52, the oldest member of the United States Paralympic team, broke the record and won the gold medal for her disability class in the individual 3,000–meter cycling pursuit.
“You can be very upset at the world and have everyone take care of you.” Buchan said by telephone from Beijing, “or get back on your feet again.”
Buchan first dreamed of Olympic gold at age 15 while watching the 1972 Munich Games. She became a top American cyclist by July 1982, when a terrible road–race crash injured her brain and left doctors doubtful about whether she would survive. She was wearing only a soft leather helmet at the time; her accident made the rule put into practice that cyclists wear the hard–shell helmets that are now common.
Buchan recovered enough of her athletic ability to run track in the 1988 Paralympics in Seoul, where she won a silver medal in the 800 meters. Women’s cycling was not included in the Paralympics yet, so Buchan trained to the point where she raced against men in the 2000 Paralympics in Sydney, Australia-she finished 9th and 10th in two races-and then successfully fought for a separate women’s cycling program beginning in 2004 in Athens, where she did not get a medal.
Even though she was approaching her 50s, Buchan kept racing and again made the United States Paralympic team for Beijing-where she is twice the age of most of her teammates and competitors.
“Barbara’s almost the leader of our team-she’s been through it all,” said Craig Griffin, the United States cycling coach. “She’s never tired. She’s never let her body go and then come back. I don’t think age is as big of a deal as people make it out to be.”
64. According to the text, after the accident, .
A.Buchan asked her friends to take care of her
B.cyclists started to wear helmets in competition
C.Buchan could not answer questions correctly
D.doctors doubted whether Buchan could come back to life
65. What’s the right order of the events related to Buchan?
a. She won a gold medal in Beijing.
b. She became a top American cyclist.
c. She won a silver medal in the 800 meters.
d. She suffered a terrible bicycle accident.
e. She took part in a cycling program in Athens.
A.c-d-b-a-e B.b-c-d-a-e
C.b-d-e-c-a D.c-b-d-e-a
66. What does the underlined phrase “get back on your feet” in the second paragraph mean?
A.rise to your feet B.walk on your way
C.go beyond yourself D.depend on yourself
67. Which of the following can be the best title for this passage?
A.The Making of a Hero B.From a Loser to a Winner
C.All Roads Lead to Rome D.Health is Better than Wealth