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Nicole Delian, 17, suffers from a condition that makes her sleep up to 19 hours a day and as much as 64 days in a row. Nicole Delian is tired of sleeping.
This 17-year-old teenager from North Fayette, Pa., has a rare condition called Kleine-Levin Syndrome -- or "Sleeping Beauty Syndrome" -- that makes her sleep 18 to 19 hours a day.
And when she does wake up, she is often so tired out that she is in a sleepwalking state and doesn't remember doing basic things like eating, according to KDKA-TV.
Nicole's sleepwalking state has been so severe that she once slept through the holidays, awaking one day in January when she finally opened Christmas gifts alongside her family, according to ChartiersValley.Patch.com. .
"She's never really adjusted to it," her mother, Vicki Delien told the website. "She's 17 now and it really upsets her. She's missed out on a lot."
Delien told talk show host Jeff Probst that the teen has at times slept 32 to 64 days in a row, waking only in sleepwalking mode to eat.
Kleine-Levin Syndrome is incredibly rare, only affecting about l,000 people worldwide, and very hard to diagnose.
In Nicole's' case, it took 25 months for doctors to diagnose her, according to ChartiersValley.Patch.com, and everything from a virus, to epilepsy(癫痫) to West Nile was mentioned, including, unfortunately, the possibility she was faking it for attention..
When a typical episode of Sleeping Beauty Syndrome begins, the patient becomes progressively drowsy(昏昏欲睡的) and sleeps for most of the day and night, waking only to eat or go to the bathroom, according to the Klein-Levin Syndrome Foundation website. "When awake, the patient's whole behavior is changed, often appearing “stupid" or childlike. When awake he experiences confusion, complete lack of energy, and lack of emotions."
Patients also report that everything seems out of focus, and that they are hypersensitive to noise and light. Some patients also have intense food cravings(渴望).
The Delians did not say whether Nicole has experienced these symptoms.
There is no known cure, but Nicole's family is using a combination of epilepsy and narcolepsy(发作性嗜睡病)medication to minimize the incidents to just two a year.
1.What's the reflection of Nicole's sleepwalking state?
A.Being forgetful. B.Missing Christmas.
C.Sleeping around the clock. D.Being exhausted and bad-tempered.
2.According to the passage, Kleine-Levin Syndrome .
A.is not impossible for doctors to diagnose
B.affects approximately l,000 people all round the country
C.is also known as Sleeping Beauty Syndrome which only affects females
D.makes those suffering this condition sleep as much as 64 days in a row without eating
3.Frorn the passage we can infer that .
A.the disease will change the patients' behavior for good
B.the case of Nicole has been covered several times by different media
C.the.patients of this kind are more and more sleepy when the syndrome begins
D.the patients of this kind become too sensitive to being exposed to any noise and light
4.According to the passage, Nicole .
A.was once suspected of lying about her condition
B.has a good appetite for food because of the disease
C.has adapted to the condition and can well cope with it
D.will be cured of the disease by using the combined medication
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In this age of Internet chat,videogames and reality television,there is no shortage of mindless activities to keep a child occupied.Yet,despite the competition,my 8-year-old daughter Rebecca wants to spend her leisure time writing short stories.She wants to enter one of her stories into a writing contest,a competition she won last year.
As a writer I know about winning contests,and about losing them.I know what it is like to work hard on a story only to receive a rejection slip from the publisher.I also know the pressure of trying to live up to a reputation created by previous victories.What if she doesn.t win the contest again?That’s the strange thing about being a parent.So many of our own past scars and dashed hopes can surface.
A revelation(启示)came last week when l asked her,”Don’t you want to win again?” “No,” she replied,“I just want to tell the story of an angel(天使)going to first grade.”
I had just spent weeks correcting her stories as she spontaneously(自发地)told them.Telling myself that l was merely an experienced writer guiding the young writer across the hall. I offered suggestions for characters,conflicts and endings for her tales.The story about a fearful angel starting first grade was quickly“guided”by me into the tale of a little girl with a wild imagination taking her first music lesson.I had turned her contest into my contest without even realizing it.
Staying back and giving kids space to grow is not as easy as it looks.Because I know very little about farm animals who use tools or angels who go to first grade,I had to accept the fact that I was co-opting(借用)my daughter’s experience.
While stepping back was difficult for me,it was certainly a good first step that l will quickly follow with more steps,putting myself far enough away to give her room but close enough to help if asked.All the while I will be reminding myself that children need room to experiment,grow and find their own voices.
【小题1】What did the author say about her own writing experience?
A.Most of her stories had been rejected by publishers. |
B.She did not quite live up to her reputation as a writer. |
C.Her way to success was full of pains and frustrations. |
D.She was constantly under pressure of writing more. |
A.She wanted to share her stories with readers. |
B.She was sure of winning with her mother’s help. |
C.She believed she possessed real talent for writing. |
D.She had won a prize in the previous contest. |
A.she was afraid Rebecca’s imagination might run wild while writing |
B.she did not want to disappoint Rebecca who needed her help so much |
C.she believed she had the knowledge and experience to offer guidance |
D.she wanted to help Rebecca realize her dreams of becoming a writer |
A.Parents should keep an eye on the activities their kids engage in. |
B.Children should be allowed freedom to grow through experience. |
C.A writing career,though attractive,is not for every child to pursue. |
D.Children should be given every chance to voice their opinions. |
I am a writer.I spend a great deal of my time thinking about the power of language—the way it can evoke (唤起) an emotion,a visual image,a complex idea,or a simple truth.Language is the tool of my trade.And I use them all—all the Englishes I grew up with.
Born into a Chinese family that had recently arrived in California,I've been giving more thought to the kind of English my mother speaks.Like others.I have described it to people as "broken" English.But feel embarrassed to say that.It has always bothered me that I can think of no way to describe it other than "broken",as if it were damaged and needed to be fixed,as if it lacked a certain wholeness.I've heard other terms used,"limited English,"for example.But they seem just as bad,as if everything is limited,including people's perceptions(认识)of the limited
English speaker.
I know this for a fact,because when l was growing up,my mother's "limited" English limited my perception of her.I was ashamed of her English.I believed that her English reflected the quality of what she had to say.That is,because she expressed them imperfectly her thoughts were imperfect.And I had plenty of evidence to support her:the fact that people in department stores,at banks,and at restaurants did not take her seriously,did not give her good service,pretended not to understand her,or even acted as if they did not hear her.
I started writing fiction in l985.And for reasons l won't get into today,I began to write stories using all the Englishes I grew up with:the English she used with me,which for lack of a better term might be described as "broken".and what I imagine to be her translation of her Chinese,her internal(内在的)language and for that I sought to preserve the essence,but neither an English nor a Chinese structure:I wanted to catch what language ability tests can never show;her intention,her feelings,the rhythms of her speech and the nature of her thoughts.
68. By saying "Language is the tool of my trade",the author means that ________.
A.she uses English in foreign trade B.she is fascinated by languages
C.she works as a translator D.she is a writer by profession
69. Which of the following is TRUE according to Paragraph 3 ?
A.Americans do not understand broken English.
B.The author's mother was not respected sometimes.
C.The author's mother had positive influence on her.
D.Broken English always reflects imperfect thoughts.
70. The author gradually realizes her mother's English is________.
A.well structured B.in the old style
C.easy to translate D.rich in meaning
71. What is the passage mainly about?
A.The changes of the author's attitude to her mother's English.
B.The limitation of the author's perception of her mother.
C.The author's misunderstanding of“limited”English.
D.The author's experiences of using broken English.
In this age of Internet chat,videogames and reality television,there is no shortage of mindless activities to keep a child occupied.Yet,despite the competition,my 8-year-old daughter Rebecca wants to spend her leisure time writing short stories.She wants to enter one of her stories into a writing contest,a competition she won last year.
As a writer I know about winning contests,and about losing them.I know what it is like to work hard on a story only to receive a rejection slip from the publisher.I also know the pressure of trying to live up to a reputation created by previous victories.What if she doesn.t win the contest again?That’s the strange thing about being a parent.So many of our own past scars and dashed hopes can surface.
A revelation(启示)came last week when l asked her,”Don’t you want to win again?” “No,” she replied,“I just want to tell the story of an angel(天使)going to first grade.”
I had just spent weeks correcting her stories as she spontaneously(自发地)told them.Telling myself that l was merely an experienced writer guiding the young writer across the hall. I offered suggestions for characters,conflicts and endings for her tales.The story about a fearful angel starting first grade was quickly“guided”by me into the tale of a little girl with a wild imagination taking her first music lesson.I had turned her contest into my contest without even realizing it.
Staying back and giving kids space to grow is not as easy as it looks.Because I know very little about farm animals who use tools or angels who go to first grade,I had to accept the fact that I was co-opting(借用)my daughter’s experience.
While stepping back was difficult for me,it was certainly a good first step that l will quickly follow with more steps,putting myself far enough away to give her room but close enough to help if asked.All the while I will be reminding myself that children need room to experiment,grow and find their own voices.
What did the author say about her own writing experience?
A.Most of her stories had been rejected by publishers.
B.She did not quite live up to her reputation as a writer.
C.Her way to success was full of pains and frustrations.
D.She was constantly under pressure of writing more.
Why did Rebecca want to enter this year’s writing contest?
A.She wanted to share her stories with readers.
B.She was sure of winning with her mother’s help.
C.She believed she possessed real talent for writing.
D.She had won a prize in the previous contest.
The author took great pains to refine her daughter’s stories because .
A.she was afraid Rebecca’s imagination might run wild while writing
B.she did not want to disappoint Rebecca who needed her help so much
C.she believed she had the knowledge and experience to offer guidance
D.she wanted to help Rebecca realize her dreams of becoming a writer
What’s the author’s advice for parents?
A.Parents should keep an eye on the activities their kids engage in.
B.Children should be allowed freedom to grow through experience.
C.A writing career,though attractive,is not for every child to pursue.
D.Children should be given every chance to voice their opinions.
查看习题详情和答案>>A little girl was given so many picture books on her seventh birthday that her father. Who should have run his office and let her mother run the home, thought his daughter should give one or two of her new books to a little neighbor boy named Robert, who had visited their home sometimes.
Now, taking books, or anything else, from a little girl is like taking sweets from a baby, but the father of the little girl had his way and Robert got a couple of her books. “After all, that leaves you with nine,” said the father, who thought he was a child psychologist(心理学家),and couldn’t shout his big stupid mouth on the subject.
A few weeks later, the father went to his library to look up “father” in The Oxford English Dictionary, eager to enjoy the praise of fatherhood through the centuries, but he couldn’t find volume(册)F-G and then he discovered that others were missing too. A-B,L-M, V-Z. He looked everywhere for them, and learned what had happened to the four missing volumes.
“A man came to the door this morning” said the little daughter, “and he didn’t know how to get from here to Torrington or from Torrington to Wintec, and he was a kind man, much nicer than Robert, and so I gave him four of your books After all, there are thirteen volumes in the Oxford English Dictionary, and that leaves you with nine.
According to the writer’s opinion,
A. a mother should keep house and father educate the children
B. A father should run the home as well as his office
C. A father should run his office and leave his children to his wife
D. A father shouldn’t only run his office but educate his children
“The father of the little girl has his way” means
the father went out to work in his office
B. the father decided to the girl a lesson
C. the father still did what he wanted to.
Considering himself a psychologist, the father
couldn’t stop discussing the subject
B. couldn’t helping(禁不住)talking about the subject
couldn’t refuse to listen to the subject
D. couldn’t give an explanation of he subject
What’s still unclear to us in the story?
A. The exact number of the picture books the girl had received.
B. How many volumes the Oxford English Dictionary includes.
C. Whether each volume of the dictionary includes entries beginning with two letters.
D. Whether the father knew his daughter’s mind well
What do we know about the little girl?
A. She liked Robert very much. B. She liked reading dictionary
She dislikes what her father did to her picture books.
D. She is a kind and helpful girl.
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